Help Save Bella Morris!

Bella is a gorgeous 4 year old little girl who is suffering from an extremely rare genetic, degenerative, life-limiting condition called Vanishing White Matter Disease that affects mostly children and young adults. VWM affects 1-in-40 million people, with less than 200 cases noted worldwide, hence minimal press on the condition.

The rapid disease progression results in loss of abilty to walk and other motor skill loss, losing the ability to walk, talk, eat. The disease leads to blindness, deafness and eventual death.

We are taking part in the Bury 10k Run on Sunday 17th September 2017 to help raise funds for the Rainbow Dream Charity. This charity was set-up in 2016 to increase awareness of the condition and the devastating effect it has on individuals and their families. With the funds that are raised, invaluable research can take place in the hope that VWM can vanish forever.

We would appreciate any amount you can donate to help support Bella and sufferers like her so that a cure can eventually be found!

Many thanks in anticipation.

Gill & Paul Duxbury x