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£295raised of £1,000 target by 12 supporters

Weʼre raising £1,000 to help fund treatment for Meg who suffers with Friedreichs Ataxia. There is an exciting new 18 month project. #miles4meg

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Story

Megan is 15 and she is my friend Richards daughter. She was diagnosed with Friedrech’s Ataxia over a year ago now. She is already dependant on a wheelchair. She has now been told that it is far more aggressive than has been suggested and will need fully aided living and a fully automated wheelchair within the next year, there is NO CURE and the only guarantee with FA is that tomorrow will be ever so slightly worse than today, there is no way to stop it.

AND THEN IN LATE 2017 A HUGE BREAKTHROUGH…. ?

In late 2017 a study was conducted in USA with breakthrough results

The university of Bristol have taken up the challenge and is currently working with this USA data to develop a treatment that could reverse the damage of FA.

Megan will qualify for these trials on her 18th birthday, until then they need to fund the research and continue to work on small clinical trials hopefully to defeat this truly horrific condition.

i must try everything to get her involved or FA will slowly but absolutely positively slowly take her body and life away from her….

The target is £29k to keep this research alive in the UK, the university of Bristol has taken this on and I want do my bit and I hope you can help me get there before its too late.

To do this I have signed up for 5 events in 8 weeks starting 29th July.

I will be completing the Ride 100, London TRI, 3 Peaks Challenge, 3 day Sportive (London to Snowdonia, ride and climb) Serpentine Swim

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peter staite

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    1 month ago

    peter staite started crowdfunding

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    Page last updated on: 8/7/2018 10:52 PM

    Supporters

    12

    • Fiona Litchfield

      Fiona Litchfield

      Aug 7, 2018

      Good luck great thing your are doing!

      £10.00

    • Mark Auckland

      Mark Auckland

      Aug 5, 2018

      Well done Pete good look for your next 1 m8

      £10.00

    • Yasmin Staite

      Yasmin Staite

      Aug 4, 2018

      Proud of you x

      £20.00

    • Sheila  Cahill

      Sheila Cahill

      Aug 1, 2018

      Well done Peter and good luck with the fundraising. Aunts Sheila xx

      £30.00

    • Paul Mastrandreas

      Paul Mastrandreas

      Jul 30, 2018

      Well done mate 👍

      £30.00

    • Natasha Shoulder

      Natasha Shoulder

      Jul 29, 2018

      Good luck pete with all your challenges xx

      £20.00

    • Alistair Shackman

      Alistair Shackman

      Jul 28, 2018

      Great effort chef! Will be cheering you on from Sydney mate. Good luck to you, Bradders and all riders.

      £50.00

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