Weʼre raising £1,000 to help fund treatment for Meg who suffers with Friedreichs Ataxia. There is an exciting new 18 month project. #miles4meg
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Megan is 15 and she is my friend Richards daughter. She was diagnosed with Friedrech’s Ataxia over a year ago now. She is already dependant on a wheelchair. She has now been told that it is far more aggressive than has been suggested and will need fully aided living and a fully automated wheelchair within the next year, there is NO CURE and the only guarantee with FA is that tomorrow will be ever so slightly worse than today, there is no way to stop it.
AND THEN IN LATE 2017 A HUGE BREAKTHROUGH…. ?
In late 2017 a study was conducted in USA with breakthrough results
The university of Bristol have taken up the challenge and is currently working with this USA data to develop a treatment that could reverse the damage of FA.
Megan will qualify for these trials on her 18th birthday, until then they need to fund the research and continue to work on small clinical trials hopefully to defeat this truly horrific condition.
i must try everything to get her involved or FA will slowly but absolutely positively slowly take her body and life away from her….
The target is £29k to keep this research alive in the UK, the university of Bristol has taken this on and I want do my bit and I hope you can help me get there before its too late.
To do this I have signed up for 5 events in 8 weeks starting 29th July.
I will be completing the Ride 100, London TRI, 3 Peaks Challenge, 3 day Sportive (London to Snowdonia, ride and climb) Serpentine Swim
Share this story
Updates appear here
peter staite started crowdfunding
Leave a message of support
Aug 7, 2018
Good luck great thing your are doing!
Aug 5, 2018
Well done Pete good look for your next 1 m8
Aug 4, 2018
Proud of you x
Aug 1, 2018
Well done Peter and good luck with the fundraising. Aunts Sheila xx
Jul 30, 2018
Well done mate 👍
Jul 29, 2018
Good luck pete with all your challenges xx
Jul 28, 2018
Great effort chef! Will be cheering you on from Sydney mate. Good luck to you, Bradders and all riders.
Become a supporter
Help peter staite raise more