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peter staite raised £365 from 16 supporters

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Closed 06/11/2018

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£365raised of £1,000 target by 16 supporters

    Weʼve raised £365 to help fund treatment for Meg who suffers with Friedreichs Ataxia. There is an exciting new 18 month project. #miles4meg

    Funded on Tuesday, 6th November 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Megan is 15 and she is my friend Richards daughter. She was diagnosed with Friedrech’s Ataxia over a year ago now. She is already dependant on a wheelchair. She has now been told that it is far more aggressive than has been suggested and will need fully aided living and a fully automated wheelchair within the next year, there is NO CURE and the only guarantee with FA is that tomorrow will be ever so slightly worse than today, there is no way to stop it.

    AND THEN IN LATE 2017 A HUGE BREAKTHROUGH…. ?

    In late 2017 a study was conducted in USA with breakthrough results

    The university of Bristol have taken up the challenge and is currently working with this USA data to develop a treatment that could reverse the damage of FA.

    Megan will qualify for these trials on her 18th birthday, until then they need to fund the research and continue to work on small clinical trials hopefully to defeat this truly horrific condition.

    i must try everything to get her involved or FA will slowly but absolutely positively slowly take her body and life away from her….

    The target is £29k to keep this research alive in the UK, the university of Bristol has taken this on and I want do my bit and I hope you can help me get there before its too late.

    To do this I have signed up for 5 events in 8 weeks starting 29th July.

    I will be completing the Ride 100, London TRI, 3 Peaks Challenge, 3 day Sportive (London to Snowdonia, ride and climb) Serpentine Swim

    Updates

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    peter staite

    Updates appear here

      5 months ago

      peter staite started crowdfunding

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      Page last updated on: 10/20/2018 7:53 PM

      Supporters

      16

      • Rebecca

        Rebecca

        Oct 20, 2018

        Well done Pete!

        £30.00

      • Steve Dallimore

        Steve Dallimore

        Sep 22, 2018

        Keep fighting the good fight!

        £20.00

      • Rea Briggs

        Rea Briggs

        Sep 21, 2018

        £10.00

      • Courtney Lucas

        Courtney Lucas

        Aug 21, 2018

        Good luck! Keep swimming :)

        £10.00

      • Fiona Litchfield

        Fiona Litchfield

        Aug 7, 2018

        Good luck great thing your are doing!

        £10.00

      • Mark Auckland

        Mark Auckland

        Aug 5, 2018

        Well done Pete good look for your next 1 m8

        £10.00

      • Yasmin Staite

        Yasmin Staite

        Aug 4, 2018

        Proud of you x

        £20.00

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      peter staite

      peter staite

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