Megan is 15 and she is my friend Richards daughter. She was diagnosed with Friedrech’s Ataxia over a year ago now. She is already dependant on a wheelchair. She has now been told that it is far more aggressive than has been suggested and will need fully aided living and a fully automated wheelchair within the next year, there is NO CURE and the only guarantee with FA is that tomorrow will be ever so slightly worse than today, there is no way to stop it.

AND THEN IN LATE 2017 A HUGE BREAKTHROUGH…. ?

In late 2017 a study was conducted in USA with breakthrough results

The university of Bristol have taken up the challenge and is currently working with this USA data to develop a treatment that could reverse the damage of FA.

Megan will qualify for these trials on her 18th birthday, until then they need to fund the research and continue to work on small clinical trials hopefully to defeat this truly horrific condition.

i must try everything to get her involved or FA will slowly but absolutely positively slowly take her body and life away from her….

The target is £29k to keep this research alive in the UK, the university of Bristol has taken this on and I want do my bit and I hope you can help me get there before its too late.

To do this I have signed up for 5 events in 8 weeks starting 29th July.

I will be completing the Ride 100, London TRI, 3 Peaks Challenge, 3 day Sportive (London to Snowdonia, ride and climb) Serpentine Swim