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Rachel Rimmer raised £1,971.7 from 12 supporters.

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Closed 25/10/2017

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£1,971raised of £1,000 target by 12 supporters

    Weʼve raised £1,971 to raise awareness of Autoinflammatory conditions so that health professionals and the public have a better understanding of our symptoms

    Oxford, United Kingdom
    Funded on Wednesday, 25th October 2017

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    Story

    *Picture: Rachel Rimmer (Chair) at 1 month old*

    People who live with Autoinflammatory conditions are often isolated, vulnerable and misdiagnosed due to the rare nature of our conditions, we have little support from health professionals or from others with similar diagnoses. As well as experiencing barriers to medical support, we often have trouble accessing other specialist help due to a lack of understanding of our conditions.

    We live with a range of debilitating symptoms such as Fevers, Rashes, Gastrointestinal issues and Inflammation in the joints.

    Rare Autoinflammatory Conditions Community UK (RACC-UK) is a new patient-led non-profit support group that offers a lifeline to patients, parents and carers who are affected by a range of Autoinflammatory conditions.

    Our online community provides emotional and practical advice for patients and their loved ones.

    We are raising money for:

    Annual Event
    We are organising our annual event, which will be held next February to coincide with Rare Diseases Day. We are inviting patients, parents, carers and medical experts to share experiences and discuss breakthroughs in research and treatment. £700

    We are also raising £500 for travel costs when we attend meetings, workshops and conferences where other organisations cannot reimburse us.

    If you can, please support us with a donation. Even the price of a coffee would make a significant difference to our work. We know times are hard, so if you can’t help with a donation we’d really appreciate a share on your Facebook.

    Facebook: https://www.facebook.com/RACCUK/?ref=page_internal
    Twitter: @RACC_UK
    Website: https://www.raccuk.com/

    Updates

    2

    • Rachel Rimmer9 months ago
      Rachel Rimmer

      Rachel Rimmer

      9 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Rachel Rimmer9 months ago
      Rachel Rimmer

      Rachel Rimmer

      9 months ago
      Update from the Page owner

      Share this update to help us raise more

    1 year ago

    Rachel Rimmer started crowdfunding

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    Page last updated on: 10/31/2017 1:19 PM

    Supporters

    12

    • Sarah Bonner

      Sarah Bonner

      Oct 3, 2017

      Keep up all your hard work Rachel & team!We took part in the Snowdon Challenge this summer for our son Oliver (4) who has CAPS & this is part of our sponsorship from lots of lovely family & friends

      £1,806.70

    • Sarah Ghillyer

      Sarah Ghillyer

      Sep 23, 2017

      For Arlo and his super parents xx

      £10.00

    • Bianca Phillips

      Bianca Phillips

      Sep 22, 2017

      Xx

      £10.00

    • Shelley Hudson

      Shelley Hudson

      Sep 22, 2017

      £10.00

    • Gillian Hudson

      Gillian Hudson

      Sep 22, 2017

      On behalf of the little superhero Arlo and his superstar Mum Kate. 😘 x x

      £10.00

    • Anonymous

      Anonymous

      Sep 22, 2017

    • Christopher Novell

      Christopher Novell

      Sep 22, 2017

      Thanks for all the hard work.

      £15.00

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    About Crowdfunding
    About the fundraiser
    Rachel Rimmer

    Rachel Rimmer

    Oxford, United Kingdom

    As the Chair of the organisation, I know how difficult it is to live with Autoinflammatory Conditions. I set this Patient Group up due to my own experiences so that I can help to support other UK patients. Please help to support us

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