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Kymberleigh Etherington raised £315 from 14 supporters
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Closed 05/07/2020
Weʼve raised £315 to help give rayne get his very own manual wheelchair & give him some much deserved independence!
- Funded on Sunday, 5th July 2020
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Story
hello & welcome!
on the 23rd of october 2018,Rayne was diagnosed with spinal muscular atrophy type 2,also known as SMA! rayne was just 2 years old,which not too our surprise was considered a late diagnosis of the condition!
heres a little bit about SMA:
it is a rare neuromuscular condition,which is genetically inheritated! it causes progressive muscle weakness & loss of movement in muscles such as the legs,arms,wrists,feet etc!
however,a ground breaking treatment finally got approved in the UK called spinraza (nusinersen) this medication is admistered via lumbar puncture into rayne's back! evidence so far suggests that the medication is slowing down the progression of the condition with the possibility of progression such as crawling!
rayne has had 4 loading doses & his treatment will be admistered every 4 months from here on out! this is not a cure for SMA,the disease will always be present with rayne & he will have it for the rest of his life!
the wheelchair will help rayne be able to play with other children,go for 'walks',move around home,go to the bathroom on his own,learn to wash his hands etc! the list goes on!
rayne has began to question me & his father (dylan) why he cant walk,he gets awfully upset & has began to say
thank you for taking the time to read raynes story,you reading his story is more than appreciated!!
if you can donate,thank you so much! it means the world to us!❤️
Updates
2
- 4 years ago
Kymberleigh Etherington
4 years agowe've had lots of new donations just in a few days,we did not expect all of the generosity,it means the world to us,more than you know! we're 20% of the way to our goal! how incredible is that?! thank you thank you thank you!❤️❤️
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- 4 years ago
Kymberleigh Etherington
4 years agothank you to everyone so far for donating,you have no idea how appreciative we are! it means the world & more that you're willing to help us give rayne his wheelchair!😊 thank you thank you thank you❤️
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Kymberleigh Etherington started crowdfunding
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Supporters
14
Joanne willoughby
Feb 21, 2020
Hope you reach your target soon xx
£10.00
Anonymous
Feb 18, 2020
£20.00
Sue Peat
Feb 16, 2020
Sending lots of love xx
£20.00
Celia Yeates
Feb 15, 2020
I hope you get all the support you need for Rayne.
Anonymous
Feb 15, 2020
£20.00
Vicky Abson
Feb 15, 2020
Hoping you reach your target soon to give Rayne a little more independence xx
£20.00
Tom Lyth
Feb 15, 2020
Good luck to you all
£40.00
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