Weʼve raised £335 to help Tim getting a handbike system to stay healthy, both physically and emotionally
- Rayleigh, United Kingdom
- Funded on Thursday, 21st September 2017
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I was diagnosed with Von Hippel Lindau (VHL) Disease at the age of 21 in 1997, just before my final exams at UEA. As I was adopted, and the condition being hereditary, I was not pre-warned at all. On the plus side, nobody else in my family has to put up with this condition.
I have had 14 general anaesthetics since then as follows:
1997 - retinal cryotherapy leading to blindness in left eye since.
2003 - spinal laminectomy
2005 - 30% of left kidney removed due to cancer.
2010 to 2014 - 9 brain surgeries to remove 9 tumours and cysts, developed hydrocephalus so had shunt fitted but developed hospital acquired meningitis. Shunt removed, 3 weeks of external antibiotics, then shunt resited to other side.
April 2014 - 5 weeks of daily radiotherapy to stop further growth of 2 remaining brain tumours.
Jan 2015 - spinal surgery to remove 3 intra medullary tumours plus removal of lamina. Resulted in sensory paralysis below waist and down left side. Have been confined to a wheelchair since.
In the past few months I have discovered Just Ride at Garrons Park, Southend. Here I have gained access to a hand propelled bike and the athletics track. I never thought I would be able to enjoy the freedom of cycling or get some meaningful exercise. It really has been a life changer and helps me remain independent.
Through contact with Just Ride, I have discovered that there is a fantastic handbike system, an RGK wheelchair and an Atitude hybrid cycle system, that I could not only use for exercise, but it could potentially open up the roads to me, and also help with my general fitness.
I also found out, unfortunately, that the whole system would cost up to £6000, a pretty impressive figure. Being unable to work following this injury, we are trying other ways to raise funds. Whilst I hope some of you will be able to join us at Garrons Park athletics track , I have set up this crowdfunding page for those who can't make or simply want to donate. please sponsor me!!!
Updates appear here
Timothy Burchell started crowdfunding
Leave a message of support
Sep 20, 2017
Hi Tim me and Dave managed 43 miles and had a great day out round Hanningfield reservoir including cake and beer. People have been suitably generous so hope this helps. Brian and Dave
Sep 11, 2017
Good luck Tim, u deserve it x
Aug 25, 2017
Apologies Tim. I thought that I'd done this already. It was only that Mum and Dad wanted to donate too that I can see I completely forgot to do my own.
Jul 14, 2017
good luck with your task Dad and Liz
Jul 13, 2017
Go Team Tim!!!!
Darren & Jenny
Jul 12, 2017
Good luck mate. Sorry we can't make the day itself - have an amazing day and hope you smash your target 🎯
Jun 22, 2017
Great idea, Tim. Fabulous to hear you are enjoying hand biking! Good luck with reaching your 🎯
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About the fundraiser
Rayleigh, United Kingdom
I have this horrific genetic condition VHL, which causes benign and malignant tumours to grow in blood rich areas, namely the retinas, the brain, the spine, the kidneys, the pancreas and the adrenal glands. I am looking to get a handbike to remain independent and healthy.
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