Weʼve raised £780 to To help fund the treatment Inaaya needs to keep her alive
- Health and medical
- Time left
- Funded on Tuesday, 3rd October 2017
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The page owner is responsible for the distribution of funds raised.
I am writing this story with a heavy heart,on behalf of a family who hold a special place in my life. Inaaya,a beautiful baby girl,was born the 6/11/16. In her short life she has brought love & joy to her family,but this threatens to be cut short as she faces a life threatening diagnosis.
On the 28th of Jan17 Inaaya took ill and after several tests & a 5 hour blood transfusion,her parents where given the news that their baby girl has Wolmans disease.
It is a rare condition found in babies which means they cannot produce an enzyme which breaks down nutrients which they need to grow & survive.children with this disease develop severe malnutrition & often dont live past early childhood.
I could sit and cry for Inaaya and her family,but I wont sit idle. This disease is ripping a family apart and has left us broken.I am hoping to raise enough money to help fund Inaaya’s treatment and help her get the medication she needs. The treatment is £500,000,I know that seems like an impossible sum but I must take a shot at this monster.
To ensure she gets the help she needs to have a long and loving life I need your help. I ask from the bottom of my heart,if its only £1, you will be making a impact on this family, giving them the support to be with their precious girl.They say you cant put a price on a life, but sadly in this case you can. This beautiful baby girl is at a crossroads, her mummy, daddy and big brother need her, they still have memories to make and so much love to give.At 3 mths old she is just starting to show her personality with a smile that could end wars, please help give this little girl the chance she & her family need.
When faced with adversity such as this we as human beings often cower & feel useless, but I will not & neither will this family, I have known them to be the strongest most will ever know, filled with bravery,strength & most of all love. Please, show love, show kindness,if it takes away a tiny amount of pain,it will be worth it.Thanku
- 6 months ago
Vici Beardsworth6 months ago
This is a new just giving page for Inaaya's fund as the previous page has reached its time limit, we have raised an amazing amount of 11,122 already, please help us keep this going and continue to raise funds to help this beautiful baby girl stay alive. Thank you for everything that people have already generously donated. Much love to you all
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