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Victoria Robson raised £695 from 25 supporters
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Closed 08/07/2017
Weʼve raised £695 to Jude's journey
- Funded on Saturday, 8th July 2017
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Story
Jude was born in October 2012 at a healthy 8lb 2oz. Jude suffered with colic, reflux and struggled to fed.
At 4 months Jude was diagnosed with a milk allergy and was prescribed a hypoallergenic formula called Nutramigen AA (now known as Nutramigen puramimo) which resolved the majorities of his issues.
That was until we started weaning. Jude was then diagnosed with more and more food allergies. Feeding was such a struggle and then at 10 months Jude just refused to eat. Our local hospital then referred us to Great ormond street hospital (GOSH) and Jude was booked to have an endoscopy, colonoscopy and an impedance study. Jude was 17 months old.
Jude's results showed Jude suffered with gastro-oesophageal reflux disease (GORD) and a eosinophilic gastrointestinal disease called Eosinophilic colitis. Jude was prescribed steroids and he was finally pain free but this was short lived as once the steroid course finished the inflammation returned.
Jude's consultant then prescribed immunosuppressants which made a massive difference to Jude's pain and flare ups however introducing food still caused a major problem. It became apparent that Jude was not responding to the usual treatment.
Jude still cannot tolerate any food. We recently had a 4 week stay at GOSH where he underwent food trials. This was a complete fail.
Jude is currently undergoing tests to look at his immune system to see if there is any abnormality there.
Jude is desperate to eat food just like his friends and we are hoping that we are close to answers and treatment that will help Jude achieve this simple and natural goal.
All funds raised will be used to support Jude and his family during hospital stays with the ultimate goal to see a specialist abroad.
💙💙💙💙💙💙💙💙💙💙💙💙💙
Updates
1
Updates appear here
- 7 years ago
Victoria Robson
7 years agoI just want to say a massive thank you to everyone who supported me and Liz when we did our bungee jump. It was an amazing experience and so pleased with the amount raised. Now to start planning the next adventure. 😁 Xxxx
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Supporters
25
Anonymous
Jun 26, 2017
Lucy Smith
Jun 7, 2017
Well done Victoria & Elizabeth on doing your bungee jump! xxx
£10.00
Carol Emmons
Jun 7, 2017
Well done from Richard and Carol
£10.00
Anonymous
Jun 5, 2017
£10.00
Anonymous
Jun 5, 2017
£10.00
Annette Robson
Jun 5, 2017
From Tricia
£10.00
Anonymous
Jun 4, 2017
£10.00
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