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Zoe Hobson raised £820 from 38 supporters
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Closed 14/03/2017
Iʼve raised £820 to Running the North London Half Marathon to raise funds for Kaleigh's treatment for DIPG - a rare & aggresive brain tumour
- Funded on Tuesday, 14th March 2017
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Story
In April 2016, my friend's 6 year old daughter, Kaleigh, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) an aggresive form of brain tumour, which currently has a 0% survival rate.
DIPG is a childhood tumour, which mainly strikes children between the ages of 4 and 10. The average survival time is 9 months from the date of diagnosis. Around 40 children are diagnosed in the UK each year and currently only 1% of the national spend has been allocated to researching brain tumours.
Symptoms include headaches, vomiting, balance / co-ordination / walking problems, abnormal eye movements / blurred vision, fits or seizures and abnormal head position such as a wry neck or stiff neck.
Kaleigh has just undergone a second round of radiotherapy, to try and shrink the tumour which unfortunately has grown. They are now waiting and if Kaleigh is in a good clinical condition and the tumour has not spread, they are hoping she can start CED treatment, which sadly is not covered on the NHS.
I am running the Vitality North London Half Marathon on 12th March 2017, to help raise funds towards the cost of this pioneering treatment and to raise awareness for DIPG. If you could find it in your heart to donate, then it would be very much appreciated. There is also a link below for the DIPG petition, to help the fight against DIPG and to convince the UK government to provide more research into brain tumours. This will hopefully help future generations of children who get diagnosed with this horrible illness. Yang and Scott will be very grateful for any help that you can give.
Links are below for the petition and the story behind Kaleigh's fight with this illness.
Global Petition: https://t.co/SPQZoM5t1J
Story behind petition: http://kaleigh.ethanet.co.uk/
Kaleigh's Trust - A battle with DIPG: https://m.facebook.com/Kaleighstrust/
Updates
2
- 8 years ago
Zoe Hobson
8 years agoThank you again to everyone who is supporting Kaleigh's Trust and my half marathon training. A nice 10 miler training session done (with a malfunctioning app!), even managed to get to the top of Highgate West Hill....now to stretch and relax for the rest of the day. Happy Sunday everyone :) xxx
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- 8 years ago
Zoe Hobson
8 years agoThank you to everyone who has donated so far, your generosity is amazing and very motivating. I did my first long distance training session on Saturday, which was very tiring on the knees but I had the support of Shelley and Tarryn to keep me going. This week will be all about yoga, with some hill training - as someone who has a lower back injury it's very important to keep strong and stretched so as not to re-injure myself. Please keep your support coming, every little donation will make a difference. Big love to you all xxx
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Zoe Hobson started crowdfunding
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Supporters
38
Poppy Open
Mar 13, 2017
Congratulations - smashing time!
£10.00
Anonymous
Mar 13, 2017
well done on completing the marathon Zoe!
sean mclaughlin
Mar 13, 2017
well done. great cause. I am a runner, if you need tips or advice.
£10.00
Alex Watson
Mar 13, 2017
Well done Zoe!
£10.00
Martina Vogelsang
Mar 12, 2017
Well done Zoe! Really proud of you xx
£10.00
Christina Giannakaki
Mar 10, 2017
Good luck!
£10.00
Anonymous
Feb 28, 2017
Burn up that rubber Zoe. And best wishes to Kayleigh and her family
£30.00
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