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Cure EB (formerly the Sohana Research Fund) exists to find a cure for Epidermolysis Bullosa- a very painful genetic skin blistering condition that leads to malignant skin cancer in young adulthood.
Cure EB Registered charity number 1158672
"Good luck Rebecca!! Hope the team does well!!"
£15.00 + £3.75 Gift Aid
"Keep up the good work to find a cure. It is such a dreadful disease which affects not just the patient but the whole family."
Mavis Brophy donated
£20.00 + £0.00 Gift Aid
"Wishing Cure EB team a great fundraising outcome in 2023 and less pain to all the butterfly skin sufferers. Mx"
£300.00 + £75.00 Gift Aid
"Amazing work Team Collins!! "
Clare Gibson donated
£10.00 + £2.50 Gift Aid
"What a great day - can't wait until next year! "
Team Imogen donated
£124.00 + £31.00 Gift Aid
"Fab effort Team Collins / Emerson! "
Auntie Tor donated
Sharmila Collins has raised $121,090.60 so far
I'm #LondonMarathon to Cure EB for Sharmila Collins because I hate running but I hate EB more. We need a cure.
Jennifer Hamilton has raised $8,214.82 so far
Jennifer's Poppy’s Golf Day
Jennifer Hamilton has raised $6,717.68 so far
I'm Golf Day and Coffee morning to for Jennifer Hamilton because We need to find a cure for EB
John Halliwell has raised $5,420.40 so far
I'm Raising money for vital research for John Halliwell because Epidermolysis Bullosa - is hell to live with!
Grant Paczensky has raised $2,856.90 so far
I'm I am riding in this years Ride London for Grant Paczensky because EB effects my family directly.
Colin Keatinge has raised $2,527.70 so far
I'm I am doing a skydive for Colin Keatinge because I want to help eradicate this cruel illness.