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Cure EB (formerly the Sohana Research Fund) exists to find a cure for Epidermolysis Bullosa- a very painful genetic skin blistering condition that leads to malignant skin cancer in young adulthood.
www.cure-eb.org
contact@cure-eb.org
Cure EB Registered charity number 1158672
"In support of all of the research to help fund treatments and to find a cure for EB. From Jarmany Limited"
Jarmany Limited donated
£2,000.00 + £0.00 Gift Aid
"Inspired by the strength and resilience of Sohana and her family. How I wish that progress will be made towards finding a cure for this awful condition, to relieve you all of this pain."
Anonymous donated
"For Sohana who inspires us all to keep going, no matter how tough the day is."
$500.00 + $0.00 Gift Aid
"In loving memory of a dear friend. God bless you Andy "
Barry and Anne Knight donated
£100.00 + £25.00 Gift Aid
"With a newborn son myself with EB I would give anything to find a cure for EB. Keep up the great work. X"
£50.00 + £12.50 Gift Aid
"I came across your charity and family today as I’ve heard about EB only very briefly before. I hope and pray this donation can help you get that little bit further in research and eventually a cure."
M.L donated
Sharmila Collins has raised $86,606.51 so far
I'm I am running the marathon around Regents park for Sharmila Collins because I hate running but I hate EB more. We need a cure.
Jennifer Hamilton has raised $8,993.54 so far
Jennifer's Poppy’s Golf Day
Jennifer Hamilton has raised $7,354.47 so far
I'm Golf Day and Coffee morning to for Jennifer Hamilton because We need to find a cure for EB
Erwan Fournis has raised $3,591.91 so far
3rd edition of the Dalmore Spring Classic
loel hickman has raised $2,529.47 so far
I'm I,m raising money to advance scientific research for loel hickman because Sohana is a fun person and i want to help her
Erwan Fournis has raised $1,252.35 so far
I'm I do this in support for Erwan Fournis because Sohana is amazing
