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TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL
http://www.cystinosis.org.uk
Cystinosis Foundation UK Registered charity number 1074885
"Keep up the good work!"
Anonymous donated
£20.00 + £5.00 Gift Aid
£20.00 + £0.00 Gift Aid
"For our Grandson, Ed, who has Cystinosis. A super boy, in every sense. Lots of love, Nan and Grandad Yates, Family and Friends"
DAVID and CORINNE YATES donated
£140.00 + £35.00 Gift Aid
"Money raised through donations at Sandy Milne’s funeral who’s great grand daughter Olivia has Cystinosis."
Glenda Lamarsh donated
£200.00 + £0.00 Gift Aid
Will Newman has raised $17,702.71 so far
I'm keeping 'Ellie' in my head for Will Newman because I want to help raise awareness and fund a cure
Nicole Moffat has raised $17,308.38 so far
I'm Friends and family are raising money and awareness for Nicole Moffat because we hope one day there will be a cure found.
Louise Kells has raised $2,922.12 so far
I'm Raising money for Louise Kells because they need funding for research.
Christopher Roberts has raised $1,822.44 so far
I'm Donations in memory of Anne Roberts for Christopher Roberts because this is a charity close to our family's heart
Birch Primary School has raised $1,499.97 so far
I'm An all-day relay event for Birch Primary School because we want to support a fellow pupil
Alison Craig has raised $1,341.84 so far
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