david's page

david paige is raising money for Ichthyosis Support Group

Participants: david paige and sombat mansati

Celebrating the wedding of david paige and sombat mansati

on 12 April 2013

Donations cannot currently be made to this page
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Story

Thanks for taking the time to visit our JustGiving page.

The Ichthyosis Support Group were founded by volunteers 15 years ago to help support families and individuals who have such severe disfiguring skin disease. Some children with severe ichthyosis do not even survive to school age. I  am currently chair of the ISG medical advisory board and have watched the charity slowly grow to the extent they can now provide small scientific grants to aid medical research. The genes for these rare conditions have all been discovered in the last 20 years and this gives the first real hope for a cure in the future. We would be so grateful if you feel you are able to make a donation. David and Sombat xxx

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Donation summary

Total
£1,575.00
+ £343.75 Gift Aid
Online
£1,575.00
Offline
£0.00

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