paul gregory

walking the Dingle Way

Fundraising for The Alkaptonuria Society
£850
raised of £1,000 target
by 21 supporters
Donations cannot currently be made to this page
Participants: paul brunsdon,jake wilson
The Alkaptonuria Society

Verified by JustGiving

RCN 1101052
We provide crucial information and support to patients living with Black Bone Disease

Story

Thank you for visiting my fundraising page.

I'm going to walk 90 miles of the Dingle Way on the west coast of Ireland's Dingle peninsula in 6 days between 15th-21st September. If I've got enough energy on the 7th day I'll climb Ireland's highest mountain Carrantuohil.

To see the walk go to www.dingleway.net

I'm doing it in aid of research towards finding a cure for Alkaptonuria.

Alkaptonuria is a debilitating and rare genetic disease that affects the cartilage and bone ,slowly destroying them. Adults with the disease often have to undergo major surgery, hip, shoulder and joint replacements and suffer from heart disease, kidney illnesses and many other problems.

Because Alkaptonuria is so rare it is unknown to the general public and poorly understood by many doctors. It is what is known as an orphan disease - orphaned from society, orphaned from the medical profession, and orphaned from the Government. Sufferers are on their own, isolated from support networks, ignored by society and overlooked by the medical establishment.

The Alkaptonuria society was set up to tackle these problems. It aims to raise awareness about Alkaptonuria among patients, their families,the public and the medical profession, and to fund research to help find a cure to this serious and rare disease.

'One of the worst things about the disease is not knowing what is causing all the pain', wrote one sufferer.The Alkaptonuria Society exists to promote information, show sufferers that they are not alone, and give them the hope that one day a cure will be found.

 Please dig deep and sponsor me online.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Alkaptonuria Society Ltd. will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.


Many thanks for your support.  Paul

About the charity

The Alkaptonuria Society

Verified by JustGiving

RCN 1101052
Transforming the lives of alkaptonuria (AKU) patients and their families, through patient support, community building and medical research. Help us cure the first genetic disease ever discovered by donating today.

Donation summary

Total raised
£850.00
+ £170.64 Gift Aid
Online donations
£625.00
Offline donations
£225.00

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