Ellen's Fundraising Page

Ellen Everett is raising money for Reverse Rett

Team: Saharan Sole Sisters

Reverse Rett Saharan Women's Challenge · 3 August 2022

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Thank you for visiting our Saharan Sole Sisters' Sponsorship page, and for supporting me - it means so much. This October, I am going to be trekking 84kms in 2 days in the Saharan heat. So why am I doing this?! Gabrielle will be 23 years old this year and over these many years I have watched her lose skills, including the ability to walk, and there has been nothing I can do about it, except to do everything I can to give her the best quality of life possible. What I can also do now is support the charity Reverse Rett, who are making huge strides in medical research, which one day will be able to reverse the symptoms of Rett Syndrome. I long for the day when Gabrielle can be involved in a drug trial, which will reverse her daily struggles and perhaps reverse her symptoms completely! I am a Mum who likes a challenge, and this is something I can do - put one foot in front of the other again and again for a distance of two marathons over 2 days! I will feel that I am doing my bit to raise as much money as possible to make my dream a reality as soon as possible.To find out more about the challenge please visit https://www.actionchallenge.com/overseas-trips/saharan-challenge/To find out more about Rett Syndrome, Reverse Rett and the work we do, please visit www.reverserett.org.uk

Donation summary

Total
£3,023.89
+ £555.00 Gift Aid
Online
£2,993.89
Offline
£30.00

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