please check your event invites, we have gone big this time hosting a homemade three course meal while enjoying entertainment by Greg Darrel with his rod Stuart show! only £6.50 a person £5 goes directly to tuberous sclerosis alliance! so get involved and enjoy the night!

we raised 109.97 at the bootsale.with enough bits left to do another one! thank you to you all!

we have a huge money event going on at saddlers farm bootsale in basildon, 6am-2pm we have a charity stall will everything from Xbox games to toys, furniture and baby items! all proceeds going to Tuberous sclerosis alliance! come down to support or buy! please share this!

some truly amazing people out there donating bits and bobs to go towards the big charity boot sale to sell for tuberous sclerosis association. thank you all

faiths just arrived at great Ormond street for her MRI scan. Mummy is freaking out about her going under :(

faiths due for her second brain scan in a couple of weeks! if you havnt read about her condition yet please take a few moments to read her story so far x

Thanks for taking the time to visit my JustGiving page

When I was pregnant with my Daughter Faith she was suspected to have a condition that I had nerver heard of-Tuberous Sclerosis complex, the nurses told me they had found a tumor in her heart and that this was often a sign that something genetic could be wrong. When we went back for more scans it was confirmed she had the condition. We were told that day that she would need a fetal MRI scan to see if the tumores were present in her brain...they were! we were asked that day if we still wanted to keep our baby, how could I not when I could already feel her moving and hick-uping inside of me!

Although the doctors managed to diagnoised Faith with TSC no one seemed to know anything about it, our local hospital couldnt tell me anything about what my daughter would be living with. We were sent to Kings Collage Hospital to learn more throgh specialist advice to find out what it all meant.

We learnt that day that these tumors in the tubers in her brain were going to block messages being sent from the brain, and that depending where or how many appeared could affect her development, from learning difficulties to never being able to learn to speak, walk or even undertand what was going on around her, maybe never even realise that I was her mummy. Some sufferers with TSC fit painfully every day having many seizers, its been known for  a TSC sufferer to fit up to 100 times a day. If faith ends up growing more tumors in her brain then she could need constant care for life.

 If that wasnt enough to take in we were then hit with another bomb shell! suffers of TSC also continually have Rhabdomyomas developing in there body tissue. These are non cancerous tumors that can sometimes develope and disapear without causing a problem but often they dont and sufferers need major life threatening opperations to remove them. they can develop in places such as the Heart, lungs, brain, liver, kidneys, stomach or eyes, to be honest they can develop anywhere but these places can cause many more complications such as having to remove lung tissue, eyes, a kidney ect ect a tumor in a dangerous place could also mean premature death.

I dont if my daughter is going to get good grades in collage or if she goes on to get a good job, my worries as a mother of a child with TSC are if she will have a good day without a seizure, or if shes growing anything in a dangerous part of her body. We take every day as it comes, knowing that each is a gift, her smile gives us hope knowing that many in my position wont even get that. We love our daughter and wouldnt change her for the world, I just hope that we can spread the word about TSC and help reaise money to continue the amazing research going into this rare condition and hopfully one day we can help find a cure for all the mothers, farthers, nans, grandads, aunties and uncles of the children with TSC and can continue with hope knowing the help is still out there.

Thank you for reading our story. please dig to the bottoms of your change pocket and donate whatever you can to help faiths fight and all thoes affected by TSC.