Helen Bly

Helen's 12 Marathons in 12 Months

Fundraising for AngelmanUK (previously ASSERT)
£2,844
raised of £1,500 target
by 171 supporters
Donations cannot currently be made to this page
AngelmanUK (previously ASSERT)

Verified by JustGiving

RCN 1021882
We help and support UK families to find the best in Angelman Syndrome.

Story

Some time ago I joined a group called Irun4Michael. They buddy runners up with disabled children who cannot run and you dedicate your runs to them. My buddy was Evan. A gorgeous little boy with an incredibly friendly family who welcomed me into their lives (despite living miles away) and I felt part of their little family straight away. Evan has Angelman Syndrome. 

What is Angelman Syndrome?  
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

I got to meet them at a run where they supported me and became my cheering squad in the rain and freezing cold at a 10 mile race in November 2016. I cried when I met them, they brought me flowers too. They are amazing and they do an amazing job for Evan. Evan is pushchair bound, so all of my miles are dedicated to him. 

I hope that I can raise some money for ASSERT so they can use the money to fund more research into Angelman syndrome and support the families that need it. 

Races

January  Liverbird Marathon - cancelled due to illness 

February - ran a virtual marathon on canal paths 4 hours 44 minutes

February 25th Belvoir 26 - 5.46.48

March 26th Canalathon 50km - 5.45.22

April 23rd London marathon 4.25.26

May 21st GU36 8.38.50

June 18th Trailblazer 6 hour solo challenge - only managed 16 miles due to 30 degree heat. Rescheduled new marathon.

July 1st Snickerthon 5.05.23

July 15th Piece of Cake Marathon (Church Stretton) 6.01.48

August 12th Thames Meander Marathon 4.54.59

September 24th Loch Ness Marathon 4.33.44

October 22nd Venice Marathon 4.35.20

November 18th Kirkstall Abbey Marathon 4.25

December 10th Leeds Liverpool Canal Marathon cancelled due to illness. Rescheduled.

December 16th Elsecar marathon 4.54.07

December 31st Liverbird Marathon 4.38

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About the charity

AngelmanUK (previously ASSERT)

Verified by JustGiving

RCN 1021882
AngelmanUK is a United Kingdom based support group for those affected by the rare genetic condition Angelman Syndome (AS). A diagnosis of AS will have life changing consequences and we are there to help families cope. We also advise medical and care professionals dealing with this rare condition.

Donation summary

Total raised
£2,844.00
+ £454.82 Gift Aid
Online donations
£2,844.00
Offline donations
£0.00

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