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Helen Bly

Helen's 12 Marathons in 12 Months

I'm running 12 marathons/ultra's in 2017 for Angelman Syndrome Support Education & Research Trust because I can run and raise money and help those who can't

153 %
£2,305.11
raised of £1,500 target
by 147 supporters
Donate

Angelman Syndrome Support Education & Research Trust

We help and support UK families to find the best in Angelman Syndrome.

Charity Registration No. 1021882

Story

Some time ago I joined a group called Irun4Michael. They buddy runners up with disabled children who cannot run and you dedicate your runs to them. My buddy was Evan. A gorgeous little boy with an incredibly friendly family who welcomed me into their lives (despite living miles away) and I felt part of their little family straight away. Evan has Angelman Syndrome. 

What is Angelman Syndrome?  
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

I got to meet them at a run where they supported me and became my cheering squad in the rain and freezing cold at a 10 mile race in November 2016. I cried when I met them, they brought me flowers too. They are amazing and they do an amazing job for Evan. Evan is pushchair bound, so all of my miles are dedicated to him. 

I hope that I can raise some money for ASSERT so they can use the money to fund more research into Angelman syndrome and support the families that need it. 

Races

January  Liverbird Marathon - cancelled due to illness 

February - ran a virtual marathon on canal paths 4 hours 44 minutes

February 25th Belvoir 26

March 26th Canalathon 50km

April 23rd London marathon

May 21st GU36

June 18th Trailblazer 6 hour solo challenge

July 15th Piece of Cake Marathon (Church Stretton)

August 12th Thames Meander Marathon

September 24th Loch Ness Marathon

October 22nd Venice Marathon

November 18th Kirkstall Abbey Marathon

December 10th Leeds Liverpool Canal Marathon 

December 31st Liverbird Marathon 

Thanks for taking the time to visit my JustGiving page.

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