Some time ago I joined a group called Irun4Michael. They buddy runners up with disabled children who cannot run and you dedicate your runs to them. My buddy was Evan. A gorgeous little boy with an incredibly friendly family who welcomed me into their lives (despite living miles away) and I felt part of their little family straight away. Evan has Angelman Syndrome.
What is Angelman Syndrome?
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.
I got to meet them at a run where they supported me and became my cheering squad in the rain and freezing cold at a 10 mile race in November 2016. I cried when I met them, they brought me flowers too. They are amazing and they do an amazing job for Evan. Evan is pushchair bound, so all of my miles are dedicated to him.
I hope that I can raise some money for ASSERT so they can use the money to fund more research into Angelman syndrome and support the families that need it.
January Liverbird Marathon - cancelled due to illness
February - ran a virtual marathon on canal paths 4 hours 44 minutes
February 25th Belvoir 26
March 26th Canalathon 50km
April 23rd London marathon
May 21st GU36
June 18th Trailblazer 6 hour solo challenge
July 15th Piece of Cake Marathon (Church Stretton)
August 12th Thames Meander Marathon
September 24th Loch Ness Marathon
October 22nd Venice Marathon
November 18th Kirkstall Abbey Marathon
December 10th Leeds Liverpool Canal Marathon
December 31st Liverbird Marathon
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