A 20k walk to raise awareness of PCD (primary ciliary dyskinesia) page

Lucy Phipson is raising money for PCD Support UK

Participants: Lucy Phipson, Hannah phipson, Suzanne phipson and friends

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A 20k walk to raise awareness of PCD (primary ciliary dyskinesia) · 9 October 2020

We are PCD Support UK. We’re here for those affected by PCD, we talk about PCD as widely as possible and we champion research to improve its diagnosis, management and treatment. Primary Ciliary Dyskinesia is a rare, genetic disease (1 in 7,500 people), causing recurrent respiratory infections.

Story

Thanks for taking the time to visit my JustGiving page.

In June 2020 my 2 year old son Max who spent a majority of his life suffering with chronic chest and breathing problems was finally diagnosed with a form of PCD (primary ciliary dyskinesia)  which is a relatively rare inherited genetic condition.  It affects the cilia (microscopic hairs lining the airways). This condition can only be managed with treatment and Without treatment mucus builds up causing infections and irreversible damage to the airways. Max has daily physio therapy, targeted antibiotics 3 times a week and uses a nebuliser once a day. 

The money raised for this charity  will hopefully provide small grants for things like specialist equipment, supporting research and run events to bring those with PCD together. 

The last two years have been a difficult time  for us and if through fundraising it means we can give other families support then it would mean so much.Thank you for any donations I appreciate it so much. 

Donation summary

Total
£2,265.00
+ £410.00 Gift Aid
Online
£2,265.00
Offline
£0.00

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