Lucy Phipson

A 20k walk to raise awareness of PCD (primary ciliary dyskinesia) page

Fundraising for PCD Support UK
£2,265
raised of £1,500 target
Donations cannot currently be made to this page
Participants: Lucy Phipson, Hannah phipson, Suzanne phipson and friends
PCD Support UK

Verified by JustGiving

RCN 1049931
We raise awareness & champion research to help PCD patients get the care they need

Story

Thanks for taking the time to visit my JustGiving page.

In June 2020 my 2 year old son Max who spent a majority of his life suffering with chronic chest and breathing problems was finally diagnosed with a form of PCD (primary ciliary dyskinesia)  which is a relatively rare inherited genetic condition.  It affects the cilia (microscopic hairs lining the airways). This condition can only be managed with treatment and Without treatment mucus builds up causing infections and irreversible damage to the airways. Max has daily physio therapy, targeted antibiotics 3 times a week and uses a nebuliser once a day. 

The money raised for this charity  will hopefully provide small grants for things like specialist equipment, supporting research and run events to bring those with PCD together. 

The last two years have been a difficult time  for us and if through fundraising it means we can give other families support then it would mean so much.Thank you for any donations I appreciate it so much. 

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About the charity

PCD Support UK

Verified by JustGiving

RCN 1049931
We are PCD Support UK. We’re here for those affected by PCD, we talk about PCD as widely as possible and we champion research to improve its diagnosis, management and treatment. Primary Ciliary Dyskinesia is a rare, genetic disease (1 in 7,500 people), causing recurrent respiratory infections.

Donation summary

Total raised
£2,265.00
+ £410.00 Gift Aid
Online donations
£2,265.00
Offline donations
£0.00

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