Tamara's #everydayinMay4Dravet challenge 2022!
Participants: See below for all participants!
Participants: See below for all participants!
#5kadayinMay4Dravet_2k4kids · 1 May 2022
My husband and I, and a selfless team of our wonderful family, friends, and friends of friends made up of children and adults are aiming to raise as much money and awareness as possible to help those affected by Dravet Syndrome and support the work of this incredible charity.
The challenge is to run 5km every day in May for adults or 2km every day for kids and their supporting parents! Please share our story using the links below.
Watch our latest video to see how we're doing here: https://youtu.be/1R4O1jLZ8GU
WHY?
For those of you who don’t already know, my amazing 6 year old nephew and godson, Dominic, lives with Dravet Syndrome which is a rare, catastrophic, lifelong, neurological condition that manifests as a chronic form of epilepsy that begins in the first year of life with frequent and/or prolonged seizures. Constant watch and care is required as seizures must be acted on quickly, and the quality of life for the person with Dravet as well as the family is severely impacted. Most people with Dravet Syndrome remain dependent on caregivers for life and 15-20% of children diagnosed don't make adulthood.
We've been overwhelmed with the response of people who want to get involved this year and in recognition of differing abilities throughout our team there are a few who will be walking or cycling the 5k/2k every day and/or a combination of running, walking and cycling. We're all moving #everydayinMay4Dravet!
Our team of Superkids are:
Cara Barne (12)
Posie Barne (10)
Poppy Brennan (7)
Wilf Brennan (9)
Lilly Bridgman (6)
Dougie Bridgman (4)
Amelia Bruce (9)
Ruben Carter (9)
Lilly Clarke (7)
Rory Clarke (9)
Sebby Clarke (6)
William Clarke (10)
Martha Combe (9)
Lexi Combe (6)
Arlo Denton (4)
Elsie Denton (7)
Hartley Denton (10)
Harry Faulkner (10)
Ellie Faulkner (6)
Sasha Fin (5)
Arlo Griffiths (8)
Mila Griffiths (6)
Sian Hando (10)
Rhys Hando (7)
Felix Mackie (6)
Oliver Mackie (7)
Louis McNeil (10)
Max McNeil (12)
Felix Mackie (5)
Oli Noon (10)
Will Noon (6)
Zach O'Regan (9)
Sebastian O'Siochain (5)
Annabel Rosemont (7)
Anais Talbot (10)
Harley Talbot (7)
Florence Tuttle (14)
Oliver Tuttle (12)
Molly Tuttle (9)
Willow Tuttle (6)
Max Ward (9)
Amelie (Mimi) Ward (7)
Eliza Ward (4)
Henry Willcock (9)
Freddie Willcock (7)
Paddy Willcock (5)
Beatrice Williams (12)
Arthur Williams (10)
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Our team of adults:
On behalf of Dominic's family, I would also like to say a HUGE thank you to all our team members taking part.
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