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As you all know my beautiful daughter Ruby at age 10 was rushed to hospital in DKA, she spent time in HDU and then a further 5 days on a ward after a diagnosis of type 1 diabetes.
This is a autoimmune, chronic condition that requires insulin for survival. Also fast acting glucose for survival.
Type 1 is a rollercoaster of a disease with some days being easy to manage and some days being very difficult. Every single thing comes into play including what she eats, everything has to be carb counted, activities, adrenaline, weather, growing. Literally everything - it’s constant. And everything needs a plan and preparation.
It’s a constant battle between insulin vs sugar!
Ruby is so very amazing and doesn’t let it get in her way, she finger pricks numberous times a day, injects insulin numerous times a day and often suffers from episodes of hypoglycaemia which comes with its own symptoms such as shaking dizziness etc and can even cause fitting etc. This is an emergency.
She then has to sit and wait 15 minutes and has been many times she’s had to sit on the sidelines and wait, sometimes a double hypo which is then a long half hour. She also very regularly has to be woken in the night when blood levels drop for instant treatment, and also sometimes when her levels rise for an injection of insulin. Yet she never moans she’s tired or anything. She has to carry her vital items everywhere she goes and it’s all a burden for a very young girl but still never moans.
She takes it all in her stride. A true inspiration. JDRF are an amazing worldwide charity constantly researching, they have scientists all over the world doing studies right now. One scientist just received a 2.5 million grant from the EU in his study for an artificial pancreas.
During the summer JDRF are hoping as many as possible all over the UK will take part in ONEFEST, and we hope that our friends and family can join us for our festival my amazing mum is hosting.
Those that can’t make it, or those that would like to donate to this awesome charity please do so via this page or anyway you can.
It’s hugely appreciated, together let’s find a CURE!
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