Lizzie PWSA

In memory of Alexandra Emma Grussing

Fundraising for Prader-Willi Syndrome Association Uk
In memory of Alexandra Emma Grussing


Alexandra Emma Grussing died suddenly in the early hours of July 11th, 2023 in Kettering surrounded by members of her family. 

Alex was diagnosed with Prader-Willi Syndrome when she was seven months old and has lived a happy and active life. Equipped with the memory of an elephant and a desire to know every plan, she was a constant source of reminders and questions for her family, friends and the loving care team at Smythe House. 

If you have any pictures or memories with Alexandra please share them using the link below

Alexandra Emma Grussing (

This page has been created on behalf of Jon and Kate Grussing, Alexandra's parents.  Charitable donations may be made in Alex's memory to the Prader-Willi Syndrome Association UK. The PWSA is and was a lifeline for Alex and her family us who loved the wonderful community of parents, carers and people with PWS who accompanied the family on this too-short 28 year journey.


About the charity

Prader-Willi Syndrome is a rare genetic abnormality causing physical and mental disabilities throughout life. PWSA UK is the only UK organisation dedicated to supporting those with PWS, their families/carers and the professionals involved with them. Please do visit at

Donation summary

Total raised
+ £1,947.00 Gift Aid
Online donations
Offline donations

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