To Mark the grim prospect of being 50 this year I’ve decided to get off my backside and do a series of running events/challenges to raise money for a charity which is close to my heart. 

In the picture with me is my nephew Harry who is our little warrior. Harry was diagnosed with Juvenile Dermatomyositis (JDM) in October 2020.

JDM is a rare autoimmune condition, which affects his muscles and skin. Harry’s diagnosis came after a couple of months of feeling under the weather, with increasing tiredness and a small rash on his face.

JDM can be difficult to diagnose but we were fortunate enough to be seen by a general paediatrician who had treated one other case. 

Harry was seen by Great Ormand Street Hospital within days and admitted to the hospital. He was treated there for 4 weeks, enduring multiple tests to confirm diagnosis, treatment and an intensive physiotherapy rehabilitation program to repair the damage to his muscles. 

Harry was remarkable throughout and we are so proud of how brave and determined he has been to get better. Harry’s condition cannot be cured and the best outcome is that he will go into remission within the next 2 to 3 years without any further flare ups but the future is uncertain. 

So I am raising money for much needed research into JDM for a small but absolutely vital charity who provide support for this condition called Myositis Uk and ReMission. 

Please donate if you can to this great cause as the more research that is funded the more chance there is of finding a cure for Harry and other children with JDM

The events I will be doing, over the next 6 months are as follows :

May :

Saturday 28th - Run Through Lee Valley Half Marathon - Completed in official time of 2 hours 11 minutes 46 seconds 

https://www.runthrough.co.uk/results/

June :

Saturday 25th -  Marston 24 Hour Challenge - This is a 24 hour race in the village I was brought up in. My aim is complete marathon distance  - however long it takes. - Official result - 7 laps completed 29.19 miles in 6 hours 33 minutes and 38 seconds .

https://3-2-1-go-running.com/marston-24-2022-results/

July : 

Friday 8th - Beds AAA 10k - Priory Marina Bedford - Official result - 58 minutes and 18 seconds 

Tuesday 12th EMPG Milton Keynes 10k - Official result 59 minutes and 4 seconds 

Run a total of 75 miles in the month - completed on 28th July 

August :

Sunday 7th - Stopsley 10 mile Trial Race - Official time 1 hour 45 minutes and 33 seconds 

Run a total of 100 miles in the month - Completed on 30th  August

September :

Sunday 4th - Bedford Festival of Running Half Marathon - Official time 2 hours 18 minutes 28 seconds 

Thursday 8th - Caterpillar Challenge - A 6 hour trial run around Ampthill Park - aiming for completing marathon distance. Official time 5 hours 54 mins 17 seconds 26.4 miles 18th out of 61

October :

Sunday 2nd London Marathon - This is for Myositis Uk who along with ReMission have helped Harry and other children just like him 

Run a total of 75 miles in the month.

November :

Saturday 5th November - Catherine Wheel Canter Guy Fowler’s Gallop Double - To finish my fun raising events I will be running a 50km run - to make it slightly more mentally challenging I will be doing it around a running track in Ware Hertfordshire. This will be 125 laps of the track. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you for your time in looking at this page and your donations .