Neil Desai

In memory of Anup Desai

Fundraising for The CJD Support Network
£4,495
raised of £20,000 target
by 99 supporters
In memory of Anup Desai
Participants: Anup Desai
The CJD Support Network

Verified by JustGiving

RCN 1097173

Story

Thank you for taking the time to visit our page in memory of our beloved Husband and Father, Anup.

We are immensely grateful for all the kind words, wishes and support you have given us all during this extremely difficult time.

Everyone that met my Dad, knew what a charismatic man he truly was. Unfortunately, in early 2021, he was diagnosed with a rare and fatal neurodegenerative disorder called Creutzfeldt-Jakob disease (CJD). Once diagnosed, the life expentancy is expected to be between 6-12 months, but being the hero and fighter that my Dad truly was he proved the specialists wrong and survived beyond 20 months. Our very own superhero!

The CJD Support Network is the only UK charity providing emotional and practical support for all strains of CJD and for those who are at greater risk of CJD.

During the last year, we were all grateful to have spent as much quality time with Dad as possible - from celebrating his 60th, to going to the cinema one final time and having music nights with all his family & friends around him.

Sadly, on 20th December 2022, our superhero stopped fighting and peacefully passed away with all his close family and friends by his side.

Thank you for taking the time to read a little bit of our story, and for donating in memory of our amazingly brave and courageous Dad. We will be thankful for any donation you are able to give, to help The CJD Support Network continue with the fantastic work they already do.

Om Shanti 🕉

Nita, Neil & Ravi xxx

About the charity

The CJD Support Network

Verified by JustGiving

RCN 1097173
The CJD Support Network offers advice, information and support for patients, carers and professionals involved in any form of suspected or confirmed CJD. We offer emotional and practical support; disseminate new information as research develops and offer advice for those who may be deemed at risk.

Donation summary

Total raised
£4,495.00
+ £832.51 Gift Aid
Online donations
£4,495.00
Offline donations
£0.00

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