Ellie was diagnosed with TANGO2 disease after a 58 day stay in the hospital.  She was 4.5 years old when this happened and we had spent the past 4.5 years looking for a diagnosis.  Then it came, and nothing was known about it.

We hope to help enhance research and look for a cure so other families don't have to go through what we did.

Thank you for supporting Ellie!