Story
Hello, My Name is :
Five years ago this February a dear friend of mine lost his fight with Cystic Fibrosis. To commemorate this both his sister and myself with be involved in various fundraisers throughout the year. These include: Concerts; sponsored head shaves; collections and bake sales, etc. All finishing with a with myself doing 4 week solo cycle ride from Great Yarmouth in Norfolk, England, along the east coast to Edinburgh in Scotland and back along the west and southern coast until back in Great Yarmouth.
Facts about CF:
- *Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
- *Cystic Fibrosis affects over 8,500 people in the UK.
- *Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
- If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
- *Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
- *Each week, five babies are born with Cystic Fibrosis.
- *Each week, three young lives are lost to Cystic Fibrosis.
- *Around half of the CF population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.
Money given to the Cystic Fibrosis Trust can provide vital medical equipment, help and support for families of those who have CF, and research into finding a cure.
It truly means a lot to the both of us that you would take the time to look at this page and thank you all for your generosity. If you would like more information about the events please email us at cs-4-cf@hotmail.co.uk
With love,
Charlotte Mijatovic and Amy Hahs