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Carl's running a half marathon for Dravet Syndrome UK

Carl Jordan is raising money for Dravet Syndrome UK

Participants: John and Mike (night crawlers)

Donations cannot currently be made to this page

Conwy Half Marathon 2016 · 20 November 2016 ·

Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Story

I am planning on taking part and completing the conwy half marathon on the 20th of november. This is the first I have run. 


Since my step son James was diagnosed with Dravet we noticed it was a very rare syndrome. We had no information about it and Dravet Syndrome UK provided us with everything we needed to get to terms with his diagnosis. From leaflets, monitors and even a shoulder to cry on if we ever need it.


Dravet Syndrome UK have helped us a family so I am raising money to give them something back. Even if it's just to raise awareness of this very debilitating condition. 

Every penny counts! 

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Donation summary

Total
£310.00
+ £62.50 Gift Aid
Online
£310.00
Offline
£0.00

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