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Carmel & Joanna's page

Carmel Fitzpatrick is raising money for The 2Simple Trust - Robyn Higgins Appeal

Participants: Joanna McDermott and Carmel Fitzpatrick

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5K Santa Run 2009 · 6 December 2009 ·

The 2Simple Trust helps families of children suffering from neuroblastoma. Help is given by the provision of financial assistance for treatment and other needs as well as the funding of research into the disease. This work will shortly be transferred to a new charity set up specifically for the purpose and called The Neuroblastoma Children’s Cancer Alliance.

Story

Joanna and I will be taking part in the 5K Santa Fun Run on 6th December 2009 in aid of the Robyn Higgins Appeal who need to raise in excess of £300,000 by the New Year for life saving treatment for Robyn in the USA.  What ever you can donate, large or small would be so gratefully appreciated. Thank you very, very much xxx
 
Please read Robyn's story below :
 
Robyn Higgins is a seven year old little girl, who in May of this year was diagnosed with stage 4 neuroblastoma cancer. This cancer is rare and aggressive and only affects children under the age of 10.

So far Robyn has endured 8 doses of chemotherapy, injections requiring intravenous antibiotics, blood/platelet transfusions, stem cell harvests and bone marrow aspirates. At the beginning of september Robyn underwent a nine hour operation to remove a tumour in her pelvis which had wrapped itself around various nerves within her pelvis and spine, this has since caused her repetitive neuropathic pain in her right leg and she is currently unable to walk though hopefully this should improve in time with intense physiotherapy.

Early this month, (October), Robyn was admitted to the Royal Marsden Hospital where she has received a high dose of chemotherapy to 'wipe out' her bone marrow. She then had previously harvested stem cells given back to her to assist her bone marrow in its recovery. This has left her extremely ill and in hospital for another month at least.

Later, Robyn will have to endure a further 3 weeks of radiotherapy and then 140 days of oral medication. After all this her condition will be reasssessed, Lisa and Greg have been told that if the cancer returns, it will not be treated in a curative way. The chances of relapse with this type of cancer are extremely high.

Her parents Lisa and Greg have found a hospital in New York called the Sloane Kettering Memorial which has pioneered a new treatment using anti-body therapy which has been very successful. This treatment is not available in the UK, and is not likely to be anytime soon. If Robyn does not receive this treatment, her current chance of survival stands at only 40%.

To get Robyn there we need to raise in excess of £300,000. We only have until New Year to do this so time is of the essence.


 

Donation summary

Total
£760.00
+ £196.03 Gift Aid
Online
£760.00
Offline
£0.00

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