Catherine McCabe

Rob Burrow Leeds Marathon

Fundraising for Alex, The Leukodystrophy Charity
raised of £500 target
by 54 supporters
Donations cannot currently be made to this page
Event: Rob Burrow Leeds Marathon 2023, on 14 May 2023
Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
We provide support to families affected with leukodystrophies


Hi everyone!

Well, I’ve signed myself up for another marathon.

I have chosen to raise money for a charity that many of you won’t have heard of. ‘ALEX - The Leukodystrophy Charity’. This charity is supporting one of the families at my school.

December 2021 was a life changing time for now 10 year old Franklin’s family when they learnt that he has a genetic disorder called adrenoleukodystrophy.

Since that time, the brain’s control of Franklin’s muscles has deteriorated meaning he is now fully dependent on his family and carers for his everyday needs.  However, this has not deterred Franklin with his cheeky sense of humour and sparkle in his eye!  He loves jokes (the ruder, the better!), and to be around his school friends.  The charity delivers support, advice, knowledge and care for those affected by different leukodystrophies such as Franklin and his family. 

If you are able, I would be most grateful for any donations to go toward this charity and to show support for Franklin.

Thank you in advance. 

About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
+ £151.25 Gift Aid
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Offline donations

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