Thanks for taking the time to visit my JustGiving page.

I seem to have grown a rather long beard by mistake.  My son had a great idea that I should shave it off for charity and we all agreed.  My daughter has a very rare condition called Juvenile Dermatomyositis (It's taken us 3 years to pronounce  this correctly) It's a very little understood condition that affects 2-3 children per million. 

https://en.wikipedia.org/wiki/Juvenile_dermatomyositis

Message from my daughter:

I would love it if you could help us achieve our goal. The hospitals I go to are great, however a cure would be fandabydosy because I hate the treatment.