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Claire Haydon-Jones avatar
Claire Haydon-Jones

Running for Rhys

I am doing the Great South Run for Muscular Dystrophy UK because because my friend's son has CMMD

132 %
£330.00
raised of £250 target
by 12 supporters
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  • Event: Great South Run 2017, 22 Oct 2017

Congenital Myotonic Dystrophy Fight Fund

Raising money to fight Congenital myotonic dystrophy

Charity Registration No. 205395 (England and Wales) - SC039445 (Scotland)

Story


My friend's son Rhys has Congenital Myotonic Dystrophy, a condition
you've probably never heard of. It's a genetic condition that comes under the umbrella of Muscular Dystrophy. I'm raising money specifically for the CMMD Fight Fund which is money that Muscular Dystrophy UK ring fence for research into Rhys's condition. Rhys's mum came up with the idea of doing the Great South Run when we were at a Christmas party and when we'd sobered up we still thought it was a good idea! Seven of us who've never done anything like this before will be Running for Rhys on 22nd October 2017. Please help us raise lots of money for Rhys and others like him - thank you x


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