Claire Brinn

Claire's Nystagmus Network Abseil

Fundraising for Nystagmus Network
raised of £1,000 target
by 29 supporters
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Nystagmus Network

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RCN 1180450
We foster and fund research to improve lives for people with nystagmus.


On Sunday 23 September 2018 I will be abseiling in the Queen Elizabeth Olympic Park from the Orbit viewing platform at 262 feet (80 metres) to raise funds for pioneering nystagmus research at Moorfields Eye Hospital and University College London.

Nystagmus affects around 1 in 1000 people and is the most common form of serious visual impairment among children. It causes involuntary eye movement and poor vision. There is currently no cure and few people with the condition can drive.

I am privileged to be a trustee of Nystagmus Network, a small but amazing charity offering support to people with the condition and funding much needed research. Our video "Nystagmus: the way we see it" explains what it's like living with the condition.

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About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

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