WWW.HI-FUND.ORG 

The Children's Hyperinsulinism Fund helps children in the UK and around the world who suffer from Congenital Hyperinsulinism. We are striving to find lifelong answers to the problems that these children face daily.

The Children's Hyperinsulinism Fund is a Fund within the Special Trustees Charity of Great Ormond Street Hospital for Children. The Fund's aim is to raise funds for research into Congenital Hyperinsulinism (CHI), also known as Persistent Hyperinsulinaemic Hypoglycaemia of Infancy (PHHI) and formerly known as Nesidioblastosis.

With the monies raised we hope to employ a full time Research Nurse, a Medical Research Fellow (Dr), Technicians/laboratory based people and equipment. Research is needed in many areas of CHI including feeding difficulties, long-term neurological implications, consequences of medical therapy and understanding the mechanisms regulating insulin secretion. These are just a few of the areas that need to be researched.

The Children's Hyperinsulinism Fund was started up by Dr Khalid Hussain, Julia Killengray, Adrienne Burton & Nicky Mumford in 2003 with Ginnette Flinn, Clare Gilbert & Kate Morgan joining soon after. The reason the Fund was set up was due to the fact that absolutely no research was being done in the UK for this condition. As a consequence of there being no research in the UK and little elsewhere, families of children with this condition have little hope of finding a cure or are unable to have many questions answered.

The severity of this condition cannot be ignored and research is desperately needed if the risk of brain damage or even death is to be avoided. Many children with this condition are very difficult to manage medically and families face a lifetime of frequent blood glucose monitoring, long-term treatment with drugs and difficulty in feeding which may require a nasogastric tube or a gastrostomy.

Many of the children end up having an operation to remove the pancreas, this then leaves the risk of developing diabetes mellitus and malabsorption of food. The Fund wants to be able to give families the hope of a better life for their children.

Further details can be found on our website www.hi-fund.org

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