Danny's 2 Half Marathons, a climb and a 100 mile bike ride

Danny McCarthy is raising money for Marfan Trust
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2 Half Marathons, a climb and a bike ride · 20 February 2015

Marfan syndrome is a disorder of the body's connective tissue, affecting the eyes, heart and skeleton.As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.

Story

Thank you to everyone that has sponsored me so far. Ive had an amazing time running and cycling all these events so ive added one final one a 10k around the Olympic Park to finish the year off.


22nd March 2015 The Reading Half Marathon

This will be my first ever half marathon, for this ive set a target of 2 hours 10 minutes but would be happy with anything under 2 hours 20 minutes.

Done in 2hours 5mins 49sec   app.strava.com/activities/272377775

June 2015 Climbing In Wales

Along with 3 other friends im climbing Tryfan and Bristley Ridge in Wales

12th July British 10k London run

10k Run starting in Piccadilly then passing number of London landmarks. Best 10k ive run is 56 mins so hoping to beat that on the day. thebritish10klondon.co.uk

Completed in 59min 39Secs www.strava.com/activities/344427366

18th July Mendips 73 mile Bike Ride

Near Glastonbury will be riding around the Mendip hills climbing over 3300ft. ukcyclingevents.co.uk/events/wiggle-mendips-sportive/

Completed in 5hours 1minute 29secs www.strava.com/activities/348797183 

2nd August 2015 Ride London 100 mile Bike Ride

This is the toughest of all the challenges im doing this year as I don’t even own a bike yet and haven’t rode one since I was kid!

Moving time of 6h 8mins

https://www.strava.com/activities/359736064

27th September 2015 Windsor Half Marathon

As ive quite a while to train for this I want to run this in under 2 Hours.

The hills killed me so ran it in 2h 13mins

https://www.strava.com/activities/401381852


The charity im doing this for is the Marfan Trust. They are the only UK charity that funds medical research so that more is known about Marfan syndrome and its management. Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Ive choosen this charity because in early 2014 my friends daughter Skye was diagnosed with Marfan Syndrome.

Skyes Story

In early 2014 Skye was diagnosed with Marfan Syndrome.

Skye has now seen over 8 different doctors and gone through several tests over the past year. Due to this disorder Skye has Hyper mobility in her joints which will affect her movement later in life.  She has pectus excavatum (a dip in her chest) which means her organs have less room to move and grow and has caused her lungs to only function at 40% capacity. She has very long arms, fingers, legs and feet.  She has a leaky valves in her heart.  The Aorta valve is at risk of dilation and rupturing in a Marfan patient. This can cause massive internal bleeding if not closely monitored throughout her life.  She also suffers from severe Scoliosis, her spine is bent and twisted and currently at 40°.  She has been wearing a spinal brace for 23 out of 24 hours a day to try and slow the progression and is now on the waiting list for an operation to have rods fitted to her spine.

Skye still surprises her friends and family.  She is such a happy child, even after all the time she spends in hospital, the doctors pulling her around doing their tests, and the 23 hours a day she spends in her spinal brace. 

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