Story
Thanks for taking the time to visit our JustGiving page.
On Sunday 23rd February we will be taking part in a Dance-a-Thon to raise much needed funds for Debra, a charity set up for sufferers of Epidermolysis Bullosa. Each person will choose their own target on how long they want to dance for, the maximum is 6 hours.
EB is a devastating skin condition which runs through my family, so this is a charity that means a great deal to Ruby and her family. They are in constant contact with Debra and experience first-hand what great work the charity does to support young families like them.
Not a day goes by without her family feeling pain or discomfort, skin blistering or tearing by a knock to the knee or friction from the carpet. Luckily they only have mild dystrophic EB; severe cases of this condition can cause cancer at a young age, disability and in some cases fatality.
As the condition is so rare (5000 cases in the UK), Debra relies solely on fundraising to continue research so one day they can find a cure.
Your donations will really make a difference so please give generously and help Debra to continue their good work.
Thanks.