just to update...the planwas to run in 2016. But a footy tackle from my 4 year old daughter put an end to that and now, thanks the amazing team at the Epilpesy Society, i get to run in 2017!!!
So, why am i putting my self through torture and pain, long days training i the cold and blisters that will keep me out of heels for weeks!
I'm running for Epilepsy as Ruby was diagnosed at 6 months old. It, as parents, was one of the scariest times of our lives. Watching Ruby have seizure after seizure and not understanding what we had done to make this happen.
4 years on, we probably still haven't come to terms fully with what this means for her, but we've seen her grow and shes just the most wonderful little girl i've ever met.
The NHS offer what support is available and they do a great job in keeping an eye on Ruby and supporting what we need for her...but my biggest frustration and the desire to run is to raise awareness of the support that parents need.
How you come to terms with it? How as a mother do you not blame yourself for it? How do you support each other as parents when you see your child in full seizure and going through numerous tests and ambulance trips.
It's really hard.
Its helped me to be able to visit Epilepsy Society through the web and understand that we're not alone, to look for advice and read other peoples stories and draw strength from that.
It's been invaluable, and the more attention we can raise to find out more about Epilepsy, and also the support that can be offered, would be great.
Thank you for reading and i appreciate any donation you can make.
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