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Edina Balczó avatar
Edina Balczó

In memory of Davide

playing music for Myeloma UK because I want to raise awerness for this type of cancer

167 %
£1,671.47
raised of £1,000 target
by 31 supporters
Donate

Myeloma UK

We fund medical research to make myeloma history

Story

 

In memory of Davide Lufrano Chaves

 

 

 

When he told me that he has a “genetic “disease few years ago I did not know what is that. He said that it might develop after when he is 40. I did not know what was Multiple Myeloma at that time.  Telling the truth he did not have so much chance, he was fighting against something which does not have a cure, it is treatable though. He was diagnosed when he was 19 but since there is no cure he decided to live his life and he had a very beautiful one! He lived his dreams, he was such a positive person and very friendly with everybody. He was a little angel. I always thought he will be with us and we will play together until we die.

 

People still do not know much about this disease and it does not get so much support either. Until one person made a big change about 15 years ago (her name is Kathy Giusti) and raised awareness and money for research through Multiple Myeloma Research Foundation. She was among the 100 most influential people in 2011 according to the Times list. Because it is such a rare disease pharmaceutical companies does not invest money in it. Although some other type of cancer gets so much attention (leukemia, testicular cancer, breast cancer etc). I know this does not bring him back, but I would like to make the change as well.

 

I would like to carry on with De fuego in memory of him and would like to raise awareness and also raise money in every single concert we will do in the future. It was very hard to make this decision but this music gave us so much happiness and in this way maybe I will feel that he is with me and with the music still. I made my first donation to Myeloma UK and please spread the word about it you too.

 

I will miss you forever and never forget the happy moments that we have together. You are an unforgettable person who greatly influenced my life.

 

With a great love,

 

x

 

Edina

 

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  • Davide Lufrano Chaves

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