Fiona Rumsby

Fiona's Winter Wolf Run page

Fundraising for Alpha-1 UK Support Group
raised of £500 target
by 43 supporters
Donations cannot currently be made to this page
Event: Winter Wolf Run, on 2 November 2013
Alpha-1 UK Support Group

Verified by JustGiving

RCN 1146330
We Provide support to patients and families to improve quality of life.


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I am raising money for the Alpha 1 UK Support Group by taking part in the Winter Wolf Run on Sunday 3 November with a group of friends.  The event is an off road 10km run / obstacle course which involves lots of mud, water and a lake swim for those brave enough to face the icy waters.

My sister-in-law's father, Ben Stockley, passed away in the summer from this incurable genetic disease, and I would like to raise as much money as possible in Ben's memory...below is a little information about Alpha- 1.

Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.




About the charity

Alpha-1 UK Support Group

Verified by JustGiving

RCN 1146330
We offer support and practical help to patients, families, carers and friends of those diagnosed with the genetic condition Alpha-1 Antitrypsin Deficiency.

Donation summary

Total raised
+ £140.00 Gift Aid
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