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DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group. DEBRA funds pioneering research to find effective treatments and, ultimately, a cure for EB. We also provide care and support to individuals and families living with EB.

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