Helen Riley

Helen's page

Fundraising for Reverse Rett
£711
raised of £600 target
Donations cannot currently be made to this page
Event: Just Walk 2013, on 11 May 2013
Reverse Rett

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RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Amy is five and looks perfect - but actually every aspect of her life is affected by something called Rett Syndrome. She can't walk, talk or direct her hands. She has epilepsy, a feeding tube in her stomach and a curved spine which means that she has to wear a rigid spinal brace all the time. She receives round-the-clock care from her loving family, who are my friends.

Rett Syndrome is caused by a single defective gene which wrecks havoc on the bodies of girls like Amy. (You can read more about Amy here: http://livingwithrettsyndrome.blogspot.co.uk )

But there is hope. Researchers have successfully reversed Rett syndrome in the lab - and scientists believe that Rett could be the first reversible neurological disorder. Funds are needed for further research and clinical trials. 

So I've signed up for a sponsored 60 kilometre walk in May over the South Downs. I really enjoy walking - but still, 60km is a long way!

The Rett Syndrome Research Trust UK is a small but very impressive charity, working tirelessly and effectively on behalf of girls like Amy.

Thank you for sponsoring me.

 

 

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£710.73
+ £147.50 Gift Aid
Online donations
£710.73
Offline donations
£0.00

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