My lovely friend's husband Phil was diagnosed with Motor Neurone Disease just over 4 months ago and I was shocked at how little there is known about any possible cure for this cruel disease. Phil's world has been blown apart and each day brings with it new and more difficult challenges. He is a kind, generous of spirit, humble and loving family man with two beautiful children and 4 loveable grandchildren. He enjoyed life to the full with his amazing wife Debs and they are about to move into their dream home.  I will be running each of the 13 miles this Sunday for Phil and all that he endures daily. 🙏.

This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.The work led by Bristol-based neurosurgeon Professor Steven Gill brings combines three elements: Gene Therapy with Viral Vectors delivered via Convection Enhanced Delivery CED.It is known that specific viruses can have a therapeutic effect on motor neurons and a technique called Convection Enhance Delivery (CED). This is able to deliver these viruses directly to the neurons in the brain. For many diseases such as MND. Delivery of genes to affected neurons to correct or repair defects has been a major challenge.The cost of the pre-clinical stage is £150,000. Thanks to My Name5 Doddie Foundation we are a third of the way there! Please help support our campaign by donating and together we can hopefully make a major breakthrough that will help.