This is by far the biggest challenge I have set myself thus far! In April 2023 I will be taking part in the London Marathon in aid of Muscular Dystrophy for my little cousin Carmela who has a rare form of Muscular Dystrophy called LMNA (L-CMD). I will be raising money for vital research into her deadly disease to hopefully one day find a cure or a way of prevention.

For those of you that don’t know Carmela, she is my 8 year old cousin who has a rare form of Muscular Dystrophy called LMNA Congenital Muscular Dystrophy. It means her skeletal, heart and lungs weaken as she grows, shortening her life. With her type of MD, her heart is at risk of a sudden heart attack. Carmela has weak neck muscles causing her to have a floppy head. She wears a lycra suit under her daily clothes to help give her stability and reduce deformities in her spine as she grows. Her knees are bendy and weak and can give way easily, she wears braces to help with this. Despite not being able to run, jump, hop, climb and do general everyday tasks. She never complains about her daily pain and limitations. 

Despite Carmela's own problems she is guaranteed to put a smile on everyone else's face.  She has raised money for her children's hospice as a way to say thank you and she continues to raise money for MDUK to help find a cure for her deadly disease. Carmela has inspired so many people she has met. She is truly an inspiration to both young and old! So please help me in giving this lovely lady the life she deserves! 

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