Holly's running the London Marathon 2015
Holly Baker-Cliff is raising money for Prader-Willi Syndrome Association Uk
Story
Thanks for taking the time to visit my JustGiving page. In April 2015 I am going to be running the London Marathon for the Prader Willi Syndrome Association!
I am so excited that I have a place to run the London Marathon for PWS as it has always been an ambition of mine! After running the Leeds Half Marathon for PWS in May 2014, I signed up.. and now I can't quite believe that I am actually going to do it (and am slightly terrified)! BUT I am so happy that I can raise money for this amazing charity.
What is PWS?
Prader-Willi Syndrome is a rare genetic condition that affects my younger sister, Daisy, so the charity is very important to me.
It is an untreatable syndrome of insatiable hunger, coupled with emotional and behavioural difficulties.
Living with PWS is hard for the individual and the whole family. The PWSA are dedicated to providing families with a support network, helping to manage the impact of PWS, sharing advice and up to date medical information, promoting healthy lifestyles and helping to improve quality of life. Treatments currently focus on managing symptoms such as behavioural issues and excessive eating.
Please take a moment to watch the NHS video that Daisy features in: http://www.youtube.com/watch?v=WYVtYfNrbUo
The PWSA receive no government funding and rely entirely on generous donations and fundraising activities.
Please donate!
Thank you
I am so excited that I have a place to run the London Marathon for PWS as it has always been an ambition of mine! After running the Leeds Half Marathon for PWS in May 2014, I signed up.. and now I can't quite believe that I am actually going to do it (and am slightly terrified)! BUT I am so happy that I can raise money for this amazing charity.
What is PWS?
Prader-Willi Syndrome is a rare genetic condition that affects my younger sister, Daisy, so the charity is very important to me.
It is an untreatable syndrome of insatiable hunger, coupled with emotional and behavioural difficulties.
Living with PWS is hard for the individual and the whole family. The PWSA are dedicated to providing families with a support network, helping to manage the impact of PWS, sharing advice and up to date medical information, promoting healthy lifestyles and helping to improve quality of life. Treatments currently focus on managing symptoms such as behavioural issues and excessive eating.
Please take a moment to watch the NHS video that Daisy features in: http://www.youtube.com/watch?v=WYVtYfNrbUo
The PWSA receive no government funding and rely entirely on generous donations and fundraising activities.
Please donate!
Thank you