Diana Camidge sadly died in September 2016, aged 46, from an extremely rare prion disease called GSS or Gerstmann–Sträussler–Scheinker (similar to CJD) for which there is currently no cure.
However there is real hope for the future - the National Prion Unit
(NPU) have created a drug which could potentially treat this illness.
Once CJD is cured, GSS is cured!
The unit is administering PRN100 (an antibody, for treating CJD) to four patients for the first time in the world after a judge in the Court of Protection confirmed that it is lawful and in the patient’s best interests to receive the unlicensed treatment.
The pioneering treatment would not have been possible without the Foundation’s contribution and ongoing support. The need for funds to support our ongoing work continues as we work towards a meaningful treatment for CJD.
The Foundation Diana’s family and friends have set up The Diana Camidge Foundation in her memory with the prime objective of raising lots of funds for the NPU, which are donated to their charitable arm The Cure CJD Campaign.
It is sadly too late for Diana. However the team would very much appreciate your sponsorship to help them raise as much money as possible for The Cure CJD Campaign so they can hopefully help to save others who have yet to be struck down with this unforgiving disease.
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