Larry's Co-op Food Large Store HR Team

Janis Martinez is raising money for Prader-Willi Syndrome Association Uk
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2017 The Great Manchester Run · 28 May 2017 ·

Prader-Willi Syndrome is a rare genetic abnormality causing physical and mental disabilities throughout life. PWSA UK is the only UK organisation dedicated to supporting those with PWS, their families/carers and the professionals involved with them. Please do visit at www.pwsa.co.uk.

Story


My team have chosen to support two charities this year, and for our first event , Kaine and Janis will be taking part in the Manchester 10k and are running for Hannah, Jacqueline Hallam's niece.

Hannah is 20 years old and was born with a genetic condition called Prader-Willi
Syndrome (PWS) 
Perhaps like Jacqueline and her family, before Hannah was born you may have never heard of this fairly rare condition before?

It is estimated that between 1500 - 2000 people live with this condition in the UK, and the condition affects their central nervous system, muscle tone, appetite amongst other things.

Without getting too medical, the truth is that this is the only organisation that supports people like Hannah and her family with what are challenging circumstances. Life expectancies are improving but Hannah is faced with the possibility of a much shorter life expectancy than her brother and cousins. Typically those affected with the disorder don't live beyond 30 years old.

The work that this organisation does is very necessary, and we are proud to be supporting them this year and raising awareness of the great work they do

May is PWSA UK awareness month, if you would like to find out more follow the link  http://www.pwsa.co.uk/news-and-research/pwsa-uk-awareness-month-may-2017.html

Thank you for your support,

Larry Large









Donation summary

Total
£5,766.18
+ £51.25 Gift Aid
Online
£5,766.18
Offline
£0.00

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