Thanks for taking the time to visit my JustGiving page.

I am doing Endure24 solo in 2023 to raise money for juvenile dermatomyositis.  JDM is a disease, dermato means skin rash and myosotis means muscle inflammation. The symptoms include skin rash and constant aching which can make JDM sufferers very weak and in a lot of pain.  As a result you struggle to walk, climb stairs, feed or dress yourself. My son was diagnosed with it in 2009 at LGI and was treated by Dr Wood and his staff for 7 years. They did an absolutely fantastic job in looking after my son and all their patients. He had intravenous drips of steroid and plasma and then steroid tablets for 6 months along with methotrexate injections for 2 and a half years after which he went into remission for just over a year. Then it flared back up again at end of 2012 and he had to start all the medication again. Luckily by 2015 he could stop all the medication and was in remission once again and still is. He is now 22 years old and doing really well and just finished his masters at university. 

Just an update to let you know how my training for Endure24 solo is going. Unfortunately since the end of March not too good due to being diagnosed with osteoarthritis in my left knee. However today I completed a 9 mile run with partner Graham and Freddie our dog, which I don’t think I could have done if I hadn’t started doing lots of yoga and other exercises to help along with taking some herbal supplements which seem to be doing their job. My intention is to do 10, 5mile laps in 24hours however if I cannot complete that I will put £5 in to my charity for every lap I cannot complete 😊 — feeling happy.