Jayne's 25 miles for Ollie page

Jayne Usher is raising money for Epilepsy Research Institute UK
In memory of Oliver Osborn
Donations cannot currently be made to this page
The Epilepsy Research Institute’s mission is to radically advance research for the #Onein100 people living with epilepsy. A life free from epilepsy is possible. But only through research We need energetic, adventurous and creative people like you to help us raise vital funds for epilepsy research!

Story

Thanks for taking the time to visit my JustGiving page. I'm fundraising on behalf of two of the strongest people I know to help them raise money for a charity very close to their hearts.

September will mark 2 years since their little boy Ollie went to be with the angels and it's a time for friends of all different fitness levels to push themselves to do something to raise some pennies for an amazing cause. 

We'll be leaving Peterlee 01st September and will walk to the two places that became Ollie and his family's 2nd homes - Sunderland Royal Hospital (12 miles) and the RVI in Newcastle (13 miles) 

Here's Ollie's story by his Mam, Danielle:

Oliver James Osborn was born 2 April 2013 and right away we knew he was going to be a special boy. On arrival the nurse noticed Oliver was doing some abnormal movements, the nurse thought it may be the stress of birth and assumed they would stop. Day 3 of life Oliver was taken to hospital as things were getting worse and he was immediately seen and sedated as he was having seizures. Bloods were taking and tests where started to find out why. Every day Oliver was sedated due to having numerous seizures and we started many different meds as nothing was working. Test after test came back normal. It was then our consultant said we are going to do genetic testing. The wait for this seemed like a life time. We were trained in the hospital to look after Oliver giving his daily meds and feeding him. We where trained on how to suction and give oxygen when needed. And after 6 months in hospital they finally discharged us and let us go home to be a family. During this time we had a lot of appointments with the doctors, having check ups and extra tests done. We also travelled to London from Peterlee to see an epilepsy specialist.
After a year of waiting the test came back and confirmed Oliver had migrating partial epilepsy in infancy, a terrible disorder. A disorder with no cure.
No meds slowed down or stopped Oliver's seizures. He was sedated up to 4 times a day and would still have over a 100 seizures daily.
He was an absolute inspiration to every one he met and more, fighting this terrible disorder every day with no break.
Oliver was loved dearly by his family, his Mam and Dad miss him every day, he was a little brother and an big brother and his brothers loved to be around him.

Sadly Oliver lost his battle with epilepsy on September 19th 2016.
Out of the blue he struggled to breath during seizures and he was blue lighted to the hospital for the first time. He had a nice settled night and came off oxygen, however early hours of the morning he started to have seizures again and struggling to breathe and he sadly passed away.
He was a true hero who fought every single day of his life.
Rest in peace Oliver we love you and miss you every day x

Donation summary

Total
£1,028.00
+ £120.75 Gift Aid
Online
£1,028.00
Offline
£0.00

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