Jen Hurst

Jen's page

Fundraising for The Gauchers Association Limited
raised of £1,500 target
by 41 supporters
Donations cannot currently be made to this page
Event: Virgin London Marathon 2011, on 17 April 2011
Participants: Janine busy training in UK!!
We fund & support research to improve the lives of Gaucher patients


3 days to go! and everyone's support has been overwhelming. Thank you to EVERYONE for your generosity and kindness :) Kristina...cant wait to run past the end of your road :))) xxxxxxxxxxxxxxx

7 days to go!!!! ready to go but not today!! bad head!! Big thx to everyone who came down town last night and supported the Full Monty boys...they did an amazing job!

9 days to go......AND i have just had a fab donation from an old pal from school :)....not been in touch with her for 30 years! If you are reading this Julie..please, please get  in touch (its an auto reply and i dont get to see your email) Thanx so much for donating :) xx

28 days to go!.....

Everyone get down The Woodmans Stroke, Rothley. They are running exclusive raffle with Algarvian Holiday Cottage as first prize! Hurry!!!... limited  tickets selling fast !! And the beer is ice cold too!! Recommend the Guinness!

42 days to go!......

Training in Carvoiero I'm definately ok now at running down London downhill?!! Many thanks for all the kind donations so far :)

53 days to go.......

I have been collecting some BRILLIANT raffle prizes. People have been great with their donations including some tickets from ZOOMARINE

Contact me to buy your raffle tickets soon! 

If you missed my story in the newspaper here it is!!

65 days to go.........April 17th 2011! 

I ran the Madrid Marathon in 2010! Its always the same day as the London Marathon and was a once in a life time experience! :) The taste of cold beer after 26 miles is unbeatable!! Addictive enough to run another 26 miles...and this time its London!

My best pal Janine lost her Dad to cancer when he was 42. He was a fast marathon runner and did London several times. Together we are going to retrace his foot steps, which I know will touch Janine's heart dearly, and at the same time raise money for her 9 year old niece Verity, who has been daignosed with Gaucher disease. Gaucher disease is a genetically inherited, enzyme deficiency disorder - see :

Verity has been in and out of Great Ormond Street Hospital  for tests, scans, infusions and a small operation and has taken it all her stride. For such a little girl, she has been incredible.

She is now receiving fortnightly enzyme replacement therapy which she needs to continue for the rest of her life.

The Gauchers Association provides support for patients and families, keeping them up to date with information on the disease as well as  holding workshops and conferences. They support much needed research into the disease. They also encourage the availability of treatments for patients. .

I would really like to help the association by raising money for our marathon run, Verity is our " mantra" and I know Janine's Dad would be very proud  .....and get us round :)

Thank you for giving what you can.



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About the charity

The Gauchers Association was formed in 1991 and is the only registered UK charity providing support to individuals and families affected by Gaucher disease, acting as the centre point for the Gaucher community working alongside medical professionals, scientists and pharmaceutical industry.

Donation summary

Total raised
+ £139.00 Gift Aid
Online donations
Offline donations

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