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My friends sonJoey was born with Diamond Blackfan Anaemia. DBA is a blood condition caused by a failure within the bone marrow. It is characterised by an inability to produce red blood cells (necessary to transport oxygen around the body). It is typically diagnosed in the first year of life with the majority of cases found before 4 months. The condition is extremely rare, affecting around 150 people in the UK and approx 1100 world wide. It requires intensive therapy, and has no known cure. DBA has a range of symptoms, from those needing little or no treatment, through steroid responsive patients to those dependant on transfusion. Joey is transfusion dependant, so although he is only 18 months old, he has already received 20 blood transfusions. Because of this, Joey's iron levels increase therefore he has to take medication for the rest of his life to avoid iron overload. The risk of iron overload is that it could cause his major organs to fail. All of which is monitored regularly by a paediatric Haematology specialist.

DBA UK is the UK based patient support group for the condition Diamond Blackfan Anaemia (DBA). So I aim to raise as much money as possible, with the help of Team Joey, friends and family. This will help them towards providing support for families (like ours) by bringing them together to provide mutual help.

Please help us achieve our target of £5000 towards this amazing charity.

Thank you