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Alan Riley avatar
Alan Riley

Charly's New Swindon Half Marathon 2017 Challenge

I am taking on the challenge of this half marathon for SUDEP Action because I want to raise awareness about Epilepsy.

97 %
£1,460.00
raised of £1,500 target
by 39 supporters
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  • In memory of: Hailey Wilson
  • Event: New Swindon Half Marathon 2017, 03 Sep 2017

SUDEP Action

We raise SUDEP & epilepsy risks awareness to prevent deaths & support those bereaved

Charity Registration No. 1164250 (England & Wales) SC047223 (Scotland)

Story

December 29, 2017 will mark the 20th anniversary of the sudden death of my beautiful sister Hailey.  She sadly suffered an epileptic seizure whilst washing her hair over the bath one morning, and tragically drowned, age 24.

Hailey lived her life without limitations, She had boundless energy, and never let her epilepsy compromise her life in any way.  She showed us how to live life to the full, and always embraced a challenge. Whether it was travelling solo to Australia and New Zealand, or skydiving and even bungee jumping, nothing fazed her.  She was definitely her own person, and fought hard to live an independent life despite her health failing her at times. 

As a complete novice to running any real distance, this is going to be a huge challenge for me.  The race takes place on Sunday 3rd September, which is Hailey's birthday.  A fitting occasion to celebrate her life, and run in her memory around Swindon, and through her old stomping ground! 

The charity I'm running for SUDEP Action exists to prevent unnecessary deaths from epilepsy. Founded in 1995 by a group of women bereaved by epilepsy, they are the only UK charity specialised in supporting and involving people bereaved by epilepsy.

Although most people with epilepsy live long and healthy lives, epilepsy is one of the top-ten causes of early death. At SUDEP Action, they focus their efforts on providing tools to help keep people safe, and on the priorities that bereaved families tell them are important: To prevent deaths; To be supported; To be involved. They have won national and international honours for their achievements to date, but recognise there is much more work to do, and this is why they need your donations. With your help they can strive to make a difference, and make every epilepsy death count.

Thank you so much for taking the time to read my page, and if you have made a donation, thank you again xxx

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