Story
Laigan is my childhood best friend's second born child and first little boy and in July this year he was referred to a pediatric unit after a visit to the GP to discuss trouble he was having hitting key milestones such as being able to sit up or hold up his own head. After lots of tests Laigan was diagnosed on the 14th of July with Spinal Muscular Atrophy type1. (SMA) SMA type1 can effect muscle movements, eating, breathing and
swallowing and is usual diagnosed within the first few months of life.
Unfortunately the sad truth is that 85% of babies with SMA type1 don't make it past 18 months.
I am happy to say Laigan and his family have been supported by friends, family, the NHS and charities such as the SMA trust since his diagnosis. With lots of donations so far the family have been able to buy specialist equipment and toys for Laigan which help to keep this smile on his face.
When I heard the news that Laigan was diagnosed with SMA type I earlier this year I didn't know what I could do to help. However there were some people who knew exactly what to do. The SMA community and health service gathered around my friend’s family and continue to get them through extremely tough times. So although I still don't know what to do to help being able to support the SMA Trust through running two marathons in two months is just a small gesture of thanks to them from a very dear friend.
By running both of the marathons I hope to raise over £3000 so any donation will go a long way.
You can follow my training on Instagram
https://www.instagram.com/26.2_for_laigan/
And you can follow Laigan's Journey on Facebook
https://www.facebook.com/Laigansjourney/