Thank you for visiting my page. I have decided to challenge myself and Run the Great north run for AYME. They are a charity close to our families heart who help and support young people and families such as ours. 

18 months ago our daughter Fifi was diagnosed with CFS/ME. This is a debilitating illness that has a wide range of symptoms. Our little girl used to love dance class, running with her friends and rough and tumbling with her younger brother Freddie. Sadly since she has become unwell the illness has taken over and most days she is unable to do these things due to the varying symptoms and the fatigue she experiences and for now dance classes are a distant memory as is a full time table at school and socialising with her friends. She spends a lot of her time in pain and has developed anxieties around this. 

Sadly although CFS/ME is one of the most common medical reasons that a young person misses out on schooling there is still not enough research been done and so many children and young people are missing out. 

As a family we stay positive and believe that Fifi will overcome this and one day go back to dance! Until then we help Fifi live a full and varied life it's just on four wheels, giving her legs a rest. 

Thank you again for taking the time to visit my page and read our story. I will keep the page updated with training pictures which I'm sure will be amusing if nothing else! 

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